Friday, September 16, 2011

a glimmer of hope

this week has been marked by loss. brokenness. injustice. and despair.
in the lives of family and friends.
in the lives of my clients.
 i feel like i have spent a long while on the mourning bench.

last night was no different.
i sat with a family as they tried to take in the neurologist's words:
"right now it is not looking good...this medication is the only chance...for some sort of recovery but we just don't know..."
medication administered.
hurry up and wait.

one hour later, i walked by to provide support to the family before they moved the patient to the ICU.
the mourning bench was moved away from the bedside.
the patient was talking. joking. touching the faces of family members.

that moment. that miracle.
doesn't erase the loss. the brokenness. the injustice. the despair.
but it goes a long way to remind me that amidst all of the sucky-ness in life, 

there is light
there is good-ness.
there is hope.

Tuesday, September 6, 2011

uh uh uh, should've said...

we used to play an improv game called "should've said."
a scene would commence on stage and when the narrator said, "uh uh uh, should've said" we would reformulate our last line, which had the effect of changing the course of the scene.
i play this game by myself now.
most often saying {uh uh uh, should've said} in my head when confronted with a situation needing fixin'.

for example, a couple of weeks ago:
we took our kiddo to the emergency room {not the one where i work} for the first time ever.
he was fine {and tubing} in the morning and then had a fever of 104.2, complaining of severe neck pain after lunch.  none of it seemed to respond to ibuprofen, so off to the ER we went.
his fever finally started to break around the time the doctor(s) came in to examine him.
{of course}

the medical team asked "so why did you bring him in again?...clinically speaking, he looks in perfect health...it is probably just a virus and the swab will come back negative but we will run one anyway.  although, if it comes back positive, he is likely just a strep carrier..."
an expensive ER visit, with a side of condescension to-go.

{uh uh uh, should've said...}
"you know, with a fever that high and complaints of neck pain, you did the right thing to bring him in.
especially if it didn't seem like the medication was bringing his fever down.
given his reported history of recurrent strep throat, we would like to run a swab to rule it out but clinically speaking, we are not seeing anything at this point to indicate infection...so it is probably just a virus..."

yo! it is the same clinical outcome, just with a side of validation for the parents
{who contemplated this decision for 2 hours, skipped dinner, drove 30 minutes to get there, and are out-of-network}

i know there are many people who misuse the emergency room for medical care. 
but those patients do not represent all patients and, furthermore, our family is not one of them.
and even if we were, a medical team has no right to treat us like we are idiots.
there are ways to both validate and educate, without resorting to condescension.

{just sayin'}

p.s. 
our kiddo woke up 10 hours later with pus draining from his ear. 
it makes me wonder what "perfect health" looks like.